Genetic

aaCG Logo only grey.png
2 Longwood Mews, Landsdale, Western Australia, Australia

Offers help and support to parents and sufferers and people in the community affected by this little known condition. Meetings held annually.

Familial Hypercholesterolemia SG.jpg

Improve information, communication and support services for families with FH in WA and help prevent premature deaths caused by high cholesterol and cardiovascular disease by raising awareness of the condition.

Fragile X Australia.jpg
Suite 204, 20 Dale Street, Brookvale NSW 2100
  • Australia-wide Support group for individuals and families affected by Fragile X syndrome and associated conditions including FXTAS and FXPOI
  • Free counselling and referral service for people with Fragile X and their families and carers.
  • Facebook page and discussion groups.
  • Quarterly newsletter.
  • Information resources and videos about Fragile X
  • Information about health professionals experienced with Fragile X
  • Information about assessment clinics.

Phone 1300 394 636 (free call)

https://www.facebook.com/fxAus/

https://www.youtube.com/channel/UCrS_dytY3o2UwCSZC8tkLDw

Blank CG Hands.png

A support; contact and information service for families affected by Fragile X Syndrome.

CG Logo only grey.jpg
Perth, Western Australia, Australia

Support group – sharing of information. Activities with kids.

GENETIC ALLIANCE AUSTRALIA logo_HR.jpg
c/- Garvan Institute of Medical Research Level 6/384 Victoria St, Darlinghurst, NSW, Australia

Genetic Alliance Australia is a tax-deductible registered charity formed in 1988 to provide peer support and information for individuals and families affected by a rare diseases, 80% of which are genetic in origin. Genetic Alliance Australia (GA-AU) is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group. GA-AU will endeavour to facilitate contact with another family/individual affected by the same, or similar condition, and/or provide information about an overseas support group. Genetic Alliance also deals with enquiries and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA-AU’s Filling the Void Project supports people living in isolation who are caring for someone with a genetic condition.
Genetic Alliance Australia has an extensive rare disease database representing 1300 conditions which enables us to put people in contact with others who have the same or similar conditions. We work alongside genetic services, allied health professionals and support organisations.
Genetic Alliance Australia is funded by NSW Health and Family and Community Services. We were successfully accredited in accordance with the requirements of the NSW Disability Services Standards in June 2015.

Genetic and Rare Disease Network.jpg
PO Box 1023, Booragoon, WA 6954

Our mission is to promote and develop awareness of genetic conditions and their impact on families and community, foster research, encourage and support service delivery by genetic support groups and facilitate their development by linking and empowering individuals, families and communities.

Facebook: https://www.facebook.com/geneticandrarediseasenetwork

Hepatitis WA Logo (High-Res).jpg
134 Aberdeen Street, Northbridge, Western Australia, Australia

Promotes community awareness and responds to the needs of people living with chronic viral hepatitis, predominately Hep C, and to those at risk.

The Deen Clinic provides hepatitis C treatments which are 100% bulk-billed, so eligibility for Medicare is required. The service is available to people who do not have a GP or their GP is not treating hepatitis C, or they do not feel comfortable accessing their GP for this purpose. People who are using drugs are encouraged to use this service if they do not feel comfortable in accessing their GP or do not have a GP.
Our services include:
Hepatitis C testing
Hepatitis C treatment
Support
No referral is required.
To make an appointment call (08) 9227 9800.

Huntingtons WA.jpg
The Niche Suite B 11 Aberdare Road Nedlands WA 6009

Provides support and information to people with Huntington’s Disease and their families. Helps to raise awareness of Huntington’s Disease in the community and educate health professionals in the needs of people with Huntington’s Disease.

Kidney Health Australia.jpg
PO Box 3470, Nedlands WA 6009

Peak national body for promoting good kidney health through education, advocacy, research and support.

Kidney Health Australia.jpg
22 Townshend Road, Subiaco, Western Australia, Australia

TelEConnect is a peer mentoring program that provides support to people living with or caring for someone with kidney disease via phone based or face to face contact.

Kidney Health Australia.jpg
22 Townshend Road, Subiaco, Western Australia, Australia

Kidney Health Australia’s WA Consumer Committee is a group of people affected by kidney disease who work together to make a positive change for Western Australians living with kidney disease.

Leukodystrophy Australia portrait vector.jpg
PO Box 850, Mornington Victoria 3931

To Provide assistance and information to those affected by Leukodystrophy and to support research into Leukodystrophy.

lupuswa.jpg
Wyllie Arthritis Centre, 17 Lemnos Street, Shenton Park, Western Australia, Australia

Act as the principal resource for lupus patients, their families, doctors and the community to provide educational awareness, support and facilitation of research activities.

melanomaWA_Logo_Square-01[7].jpg
80 Railway Street, Cottesloe Western Australia 6011, Australia

A positive and welcoming environment where people affected by Ocular Melanoma can come together to chat about feelings and coping strategies, support each other, develop friendships, share ideas and thoughts and obtain information from expert guest speakers and each other.

Attending a support group can help you feel empowered, inspired and increase your ability to cope through increased knowledge and understanding of melanoma, research and treatments. We invite guest speakers to deliver up to date information about melanoma, research, treatments and lifestyle options that can help your wellbeing.

Everyone is welcome at our support groups, including carers or family and friends. We recognise that being the carer of someone with melanoma can be stressful, confusing or throw you out of your comfort zone. Attending a support group with your loved one can help you understand more about how they are feeling and help ease the emotional load that you are carrying.

Call or email Support Services Coordinator Clare Moynihan for venue and time details, and to have a chat about what you can expect when you come to a meeting: 08 9322 1908/ support@melanomawa.org.au

Postal Address: PO Box 6173, Swanbourne, Western Australia 6010

melanomaWA_Logo_Square-01[7].jpg
Bortolo Pavillion, Cnr Bortolo & Murdoch Drives, Mandurah, Western Australia, Australia 6210

A positive and welcoming environment where people affected by melanoma can come together to chat about feelings and coping strategies, support each other, develop friendships, share ideas and thoughts and obtain information from expert guest speakers and each other.

Attending a support group can help you feel empowered, inspired and increase your ability to cope through increased knowledge and understanding of melanoma, research and treatments. We invite guest speakers to deliver up to date information about melanoma, research, treatments and lifestyle options that can help your wellbeing.

Everyone is welcome at our support groups, including carers or family and friends. We recognise that being the carer of someone with melanoma can be stressful, confusing or throw you out of your comfort zone. Attending a support group with your loved one can help you understand more about how they are feeling and help ease the emotional load that you are carrying.

Call or email Support Services Coordinator Clare Moynihan for venue and time details, and to have a chat about what you can expect when you come to a meeting: 08 9322 1908/ support@melanomawa.org.au

 

Postal Address: PO Box 6173, Swanbourne, Western Australia 6010

melanomaWA_Logo_Square-01[7].jpg
80 Railway Street, Cottesloe, Western Australia, Australia 6210

A positive and welcoming environment where people affected by melanoma can come together to chat about feelings and coping strategies, support each other, develop friendships, share ideas and thoughts and obtain information from expert guest speakers and each other.

Attending a support group can help you feel empowered, inspired and increase your ability to cope through increased knowledge and understanding of melanoma, research and treatments. We invite guest speakers to deliver up to date information about melanoma, research, treatments and lifestyle options that can help your wellbeing.

Everyone is welcome at our support groups, including carers or family and friends. We recognise that being the carer of someone with melanoma can be stressful, confusing or throw you out of your comfort zone. Attending a support group with your loved one can help you understand more about how they are feeling and help ease the emotional load that you are carrying.

Call or email Support Services Coordinator Clare Moynihan for venue and time details, and to have a chat about what you can expect when you come to a meeting: 08 9322 1908/ support@melanomawa.org.au

Postal Address: PO Box 6173, Swanbourne, Western Australia 6010

melanomaWA_Logo_Square-01[7].jpg
80 Railway Street, Cottesloe, Western Australia, Australia 6210

A positive and welcoming environment where people affected by melanoma can come together to chat about feelings and coping strategies, support each other, develop friendships, share ideas and thoughts and obtain information from expert guest speakers and each other.

Attending a support group can help you feel empowered, inspired and increase your ability to cope through increased knowledge and understanding of melanoma, research and treatments. We invite guest speakers to deliver up to date information about melanoma, research, treatments and lifestyle options that can help your wellbeing.

Everyone is welcome at our support groups, including carers or family and friends. We recognise that being the carer of someone with melanoma can be stressful, confusing or throw you out of your comfort zone. Attending a support group with your loved one can help you understand more about how they are feeling and help ease the emotional load that you are carrying.

Call or email Support Services Coordinator Clare Moynihan for venue and time details, and to have a chat about what you can expect when you come to a meeting: 08 9322 1908/ support@melanomawa.org.au

Postal Address: PO Box 6173, Swanbourne, Western Australia 6010

melanomaWA_Logo_Square-01[7].jpg
Dot's Place, 62 Forrest Avenue, Bunbury WA 6230, Australia

A positive and welcoming environment where people affected by melanoma can come together to chat about feelings and coping strategies, support each other, develop friendships, share ideas and thoughts and obtain information from expert guest speakers and each other.

Attending a support group can help you feel empowered, inspired and increase your ability to cope through increased knowledge and understanding of melanoma, research and treatments. We invite guest speakers to deliver up to date information about melanoma, research, treatments and lifestyle options that can help your wellbeing.

Everyone is welcome at our support groups, including carers or family and friends. We recognise that being the carer of someone with melanoma can be stressful, confusing or throw you out of your comfort zone. Attending a support group with your loved one can help you understand more about how they are feeling and help ease the emotional load that you are carrying.

Call or email Support Services Coordinator Clare Moynihan for venue and time details, and to have a chat about what you can expect when you come to a meeting: 08 9322 1908/ support@melanomawa.org.au

Postal Address: PO Box 6173, Swanbourne, Western Australia 6010

meningitis_logo.png
The Niche , 11 Aberdare Road, Nedlands, WA 6009

Provides family support services to people who have had their life impacted by meningitis and meningococcal. Also provides information on all forms of meningitis and meningococcal. Immunisations available.

Freecall: 1800 250 223

Showing 21 - 40 of 75 results