RVA is a national not for profit organisation, established in 2012, advocating for and promoting health policy and a healthcare system that works for those with rare diseases. RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia. RVA provides information to individuals, and links to other rare disease support groups, organisations and international rare disease partner organisations.
Rare Voices Australia
PO Box 138 Mentone, Victoria, 3194
5 Stawell Street Mentone Victoria 3194 AU
0497 003 104