24 hours a day, 7 days a week telephone or email contact for newly diagnoses families and friends. Brochures, information and support for anyone needing assistance with Cystinosis. This includes doctors who wish to know more information (in Australia and New Zealand).
Australian Cystinosis Support Group
8 Potter Way, Pinjarra Western Australia 6208, Australia
8 Potter Way Pinjarra Western Australia 6208 AU
0407 196 685
Support groups with online meetings available