Verified
Australia
Empowering ECTODERMAL DYSPLASIA COMMUNITY through advocacy, support and connection.
A community that provides support and assistance to individuals and families who have been diagnosed with Ectodermal Dysplasias.
Hosting an annual Camphrence (camp/conference) and quarterly virtual meetings as well as a Facebook group.
Contact Person
Beth Ferlazzo
Phone
0402 517 625
Support groups with online meetings available
Yes