Genetic Alliance Australia is a tax-deductible registered charity formed in 1988 to provide peer support and information for individuals and families affected by a rare diseases, 80% of which are genetic in origin. Genetic Alliance Australia (GA-AU) is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group. GA-AU will endeavour to facilitate contact with another family/individual affected by the same, or similar condition, and/or provide information about an overseas support group. Genetic Alliance also deals with enquiries and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA-AU’s Filling the Void Project supports people living in isolation who are caring for someone with a genetic condition.
Genetic Alliance Australia has an extensive rare disease database representing 1300 conditions which enables us to put people in contact with others who have the same or similar conditions. We work alongside genetic services, allied health professionals and support organisations.
Genetic Alliance Australia is funded by NSW Health and Family and Community Services. We were successfully accredited in accordance with the requirements of the NSW Disability Services Standards in June 2015.
Rare genetic conditions or rare diseases
Metro meetings on Sunday so families can travel and attend or weekends rural outreach seminars on Saturdays and siblings workshops on a Sunday. Rural social dinner after the seminar on the Saturday.