In Western Australia, hundreds of Peer Support Groups and other Non-Government Organisations (NGOs) provide crucial support for those living with rare, genetic, and undiagnosed conditions.


In 2021 ConnectGroups was engaged by the WA Department of Health (Office of Population Health Genomics) to undertake a project aimed at understanding and identifying the challenges faced by peer Support Groups and Organisations in the Rare, Genetic and Undiagnosed Conditions sector. This resulted in 8 recommendations presented to the Health Department. The Health Department has now re-engaged ConnectGroups to address Recommendations 3 and 5 to promote awareness of Groups/Organisations and of the Rare, Genetic, and Undiagnosed Conditions that they target and to establish a specialised Training and Development Program to promote self-sufficiency in order to build the capacity and capability of the sector (see report here).


The Strengthening the Capacity and Capability of the Rare, Genetic and Undiagnosed Conditions Sector in WA Sector Development Program will be a co-designed program to support Groups and Organisations within the sector to increase their capacity and capability to remain sustainable and continue to provide their invaluable services to the wider community.

NEW 2023 Sector Development Training Program

ConnectGroups’ NEW Sector Development Training Program for the Rare, Genetic and Undiagnosed Conditions Sector is an accessible opportunity for support groups and organisations looking to build their capacity and capability by upskilling their staff and volunteers.

This program is offered to peer support groups and organisations within the Rare, Genetic and Undiagnosed Conditions Sector. Running from February 2023 through November 2023 on a Thursday from 10am – 1pm. There will be 10 workshops offered and light refreshments at all.  Consumer payments will be provided to all participants.

Workshops being offered:

  1. Financial Literacy
  2. Grants/Fundraising
  3. Self-Awareness/Building Resilience
  4. The Occasional Counsellor
  5. Cultural Awareness
  6. NDIS
  7. Self-Advocacy
  8. How to Engage Members
  9. Volunteers – Recruit and Retain
  10. Carer Support

EOI for Support Groups and Organisations

For Support Groups or Organisations that would like to split up the workshops between staff and volunteers rather than having one person attend all 10 workshops by themselves. You can apply for up to three (3) participants from your organisation.

Click here to submit EOI.

EOI for Individuals

For individuals who are associated with a Rare, Genetic, or Undiagnosed Conditions Support Group or Organisation who would like to attend all 10 workshops. More than one person per organisation can apply.

Click here to submit EOI.

International Day of People with Disability

Saturday 3rd December is the International Day of People with Disability. The day focuses on building a more inclusive community, promoting an understanding of disability issues and mobilising support for the dignity, rights, and wellbeing of persons with disabilities. If you’d like to get involved and show your support, please see below upcoming events you can participate in.

City of Mandurah Morning Tea

1st December 2022

Join the City of Mandurah at a local morning tea to celebrate the leadership and contribution of local people with disability and together build a more inclusive community.

Click here for details.

Annual Perth Catch Up

3 December 2022

Join Sotos Syndrome Association for an Annual Perth Catch Up which will include tasty bunch treats, coffee van, games and facepainting. Held at Matilda Bay Reserve from 10am – 12pm.

Click here to RSVP.

For more information on this project, please contact:

Training and Development Coordinator: Emily Mostyn-Brown

(08) 9364 6909

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