Genetic

Support groups with online meetings available
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For women living with metastatic breast cancer. Meets on the 4th Tuesday of each month.

Breast Cancer Care WA groups are a safe environment to share in confidential conversations with other women navigating their way through breast cancer. All groups meet monthly and are facilitated in the community by a counsellor.

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For women living with metastatic breast cancer. Meets on the 1st Wednesday of each month.

Breast Cancer Care WA groups are a safe environment to share in confidential conversations with other women navigating their way through breast cancer. All groups meet monthly and are facilitated in the community by a counsellor.

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For women with early breast cancer that are under 45 or with school aged children. Meets on the 2nd Monday of each month.

Breast Cancer Care WA groups are a safe environment to share in confidential conversations with other women navigating their way through breast cancer. All groups meet monthly and are facilitated in the community by a counsellor.

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For women with early breast cancer that are under 45 or with school aged children. Meets on the 4th Friday of each month.

Breast Cancer Care WA groups are a safe environment to share in confidential conversations with other women navigating their way through breast cancer. All groups meet monthly and are facilitated in the community by a counsellor.

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For women under 45 or with school aged children living with metastatic breast cancer. Meet on the 3rd Thursday of each month.

Breast Cancer Care WA groups are a safe environment to share in confidential conversations with other women navigating their way through breast cancer. All groups meet monthly and are facilitated in the community by a counsellor.

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SJOG Hospital, Conference Room 1, Ground Floor, Cnr Bussell Highway & Robertson Drive, Bunbury, Western Australia, Australia

Provides people living with leukaemia, lymphoma, myeloma and related blood disorders and their families and friends support through informal support network settings.

Postal Address: PO Box 586 Balcatta, Western Australia 6914

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A H Crawford Lodge 55 Monash Avenue Nedlands WA 6009

CanTeen is a peer support network for young people living with cancer as a patient; sibling; as someone whose parent or primary caregiver has or has had cancer; or if they are bereaved. The age group is from 12-25 years.

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18 Ringtail Pathway, Dawsville, 6211

Provides information and support to parents of children with Cardio Facio-Cutaneous; Noonans or Costello Syndrome.

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13 Troy Avenue, Marmion WA, Australia

Support is provided by members who have personal experience of CMT (a generic condition of the peripheral nervous system) either as an individual or family member.

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Building 22, Concord Hospital, Hospital Rd, Concord West, New South Wales, Australia

Provide support through contact with people with CMT; Distribution of information related to the welfare of people with CMT; Promote the development of facilities and services for people with CMT; Actively support CMT research.

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The Cleft Palate and Lip Society WA (CleftPALS WA) was established to provide support, reassurance, and knowledge to parents and their families of a child born with a cleft condition.

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11 Aberdare Road, Nedlands WA, Australia

We are a support group that aims to provide helpĀ and networking opportunities for people in WA with communication difficulties. Since our establishment in 2006, our focus has been to increase community awareness and services available to those who have communication difficulties.

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PO Box 959 Nedlands WA 6909

Contributes to the social, physical and emotional wellbeing of those affected by Cystic Fibrosis and assists in the promotion of research. Services available to people with Cystic Fibrosis and their families, including free advice and information.

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Innaloo, Western Australia, Australia

Helps members to manage their own Diabetes and any other grievances they have from Diabetes. Encourages a healthy lifestyle and provides information through guest speakers and professionals.

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2 Longwood Mews, Landsdale, Western Australia, Australia

Offers help and support to parents and sufferers and people in the community affected by this little known condition. Meetings held annually.

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Improve information, communication and support services for families with FH in WA and help prevent premature deaths caused by high cholesterol and cardiovascular disease by raising awareness of the condition.

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Suite 204, 20 Dale Street, Brookvale NSW 2100
  • Australia-wide Support group for individuals and families affected by Fragile X syndrome and associated conditions including FXTAS and FXPOI
  • Free counselling and referral service for people with Fragile X and their families and carers.
  • Facebook page and discussion groups.
  • Quarterly newsletter.
  • Information resources and videos about Fragile X
  • Information about health professionals experienced with Fragile X
  • Information about assessment clinics.

Phone 1300 394 636 (free call)

https://www.facebook.com/fxAus/

https://www.youtube.com/channel/UCrS_dytY3o2UwCSZC8tkLDw

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A support; contact and information service for families affected by Fragile X Syndrome.

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Perth, Western Australia, Australia

Support group – sharing of information. Activities with kids.

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c/- Garvan Institute of Medical Research Level 6/384 Victoria St, Darlinghurst, NSW, Australia

Genetic Alliance Australia is a tax-deductible registered charity formed in 1988 to provide peer support and information for individuals and families affected by a rare diseases, 80% of which are genetic in origin. Genetic Alliance Australia (GA-AU) is a peak umbrella group for rare genetic conditions/diseases, so rare they do not have their own support group. GA-AU will endeavour to facilitate contact with another family/individual affected by the same, or similar condition, and/or provide information about an overseas support group. Genetic Alliance also deals with enquiries and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA-AU’s Filling the Void Project supports people living in isolation who are caring for someone with a genetic condition.
Genetic Alliance Australia has an extensive rare disease database representing 1300 conditions which enables us to put people in contact with others who have the same or similar conditions. We work alongside genetic services, allied health professionals and support organisations.
Genetic Alliance Australia is funded by NSW Health and Family and Community Services. We were successfully accredited in accordance with the requirements of the NSW Disability Services Standards in June 2015.

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